A seven-year-old girl who inspired state legislators to legalize access to medicinal cannabis oil has passed away.
Lydia Schaeffer died in her sleep Sunday before she was able to treat her seizure disorder with medical marijuana.
In April, Governor Scott Walker signed a bill – surrounded by Lydia and the Schaeffer Family – legalizing cannabidiol (CBD), a cannabinoid that is low in THC but highly effective in treating seizures
The measure was passed after years of Wisconsin lawmakers squabbling over the medical pot issue. Unfortunately, the delay meant that even after CBD was finally legalized, parents like Sally and Tom Schaeffer were put on a waiting list preventing them from obtaining the medicine until fall. Sally had spent months lobbying lawmakers and mustering media support to legalize CBD.
In her short life, Lydia suffered from the rare chromosome disorder Kleefstra syndrome, which causes developmental disabilities. Lydia was also epileptic and autistic.
On Tuesday, Sally Schaeffer told the Journal-Sentinel: "I kept thinking to myself we've just got to buy Lydia some time, we've just got to buy her some time. And I guess we didn't buy enough."
Senator Robert Wirch (D) informed Sally that he was attempting to rename the Wisconsin CBD measure as “Lydia’s Law.” In preserving her daughter’s memory, Sally plans to start a foundation that will aid families in accessing and affording CBD.
More information can be found at: www.lovinglydia.com/